SIDS Project Impact

Resources

The Association of SIDS and Infant Mortality Programs

ASIP is an association of health and human service professionals committed both to bereavement support for families and communities affected by sudden infant death and to the promotion of infant mortality risk reduction initiatives. ASIP strives to build and maintain a high standard of bereavement service and professional education to all populations, promotes collaboration within the professional and volunteer communities that are working with bereaved families, advances risk reduction initiatives, and advocates for these issues at state, local and national levels.

Recent ASIP publications include:

Bereavement Counseling for Sudden Infant Death Syndrome (SIDS) and Infant Mortality: Core Competencies for the Health Care Professional (May 2004, 39 pp.) -- This publication sells for $10 a copy. Contact ASIP by email or at 1 (800) 930-7437.

Pilot of ASIP SIDS and Other Infant Death Program Evaluation Plan: Final Report, 2003 -- Contact ASIP by email or at 1 (800) 930-7437.

The Unexpected Death of an Infant or Child: Standards for Services to FamiliesDoctor's office

 

Members of ASIP authored the recent HRSA/MCHB Final Report, "A Case Study of Faith-Based Outreach in New York City: Lessons Learned from a Risk Reduction Initiative" (2004). ASIP has also partnered with NFIMR (the National Fetal and Infant Mortality Review Program) on two recent publications: A Guide for Home Interviewers (2002) and the NFIMR Bulletin, Cross Cultural Expressions of Grief and Loss: When an Infant Dies, Vol. 2 (2003). For more information contact ASIP by email or at 1 (800) 930-7437.

 

Maternal and Child Health SIDS/ID Programs

The four MCHB SIDS / Infant Death programs include National SIDS/ID Project IMPACT and . . .

National SIDS & Infant Death Resource Center

NSIDRC produces and provides professional and consumer education materials on SIDS, other infant death, and related issues such as grief and bereavement and risk reduction, in fact sheets, newsletters, brochures and other documents.

National SIDS & Infant Death Program Support Center

The goal of the NSIDPSC is to enhance and strengthen community-based, family-centered, comprehensive, coordinated and culturally competent systems of risk reduction and bereavement services in all fifty states.

National Center for Cultural Competence, SIDS & Infant Death Project

The mission of the NCCC is to increase the capacity of health care and mental health programs to design, implement and evaluate culturally and linguistically competent service delivery systems.

 

The Maternal and Child Health Bureau

Infant breastfeeding

MCHB is part of the Health Resources and Services Administration,U.S.Department of Health and Human Services, and is charged with primary responsibility for promoting and improving the health of our nation's mothers and children.  The Bureau's mission is to provide national leadership and to work in partnership with states, communities, public-private partners, and families to strengthen the maternal and child health (MCH) infrastructure, assure the availability and use of medical homes, and build knowledge and human resources to assure continued improvement in the health, safety, and well-being of the MCH population.

 

National Institute of Child Health and Human Development

The National Institute of Child Health and Human Development (NICHD) is one of the 27 Institutes and Centers of the National Institutes of Health, or NIH. The mission of NICHD is to ensure that every person is born healthy and wanted, that women suffer no harmful effects from the reproductive process, and that all children have the chance to fulfill their potential for a healthy and productive life, free of disease or disability.

Back to Sleep logoNICHD's Back to Sleep campaign has been successful in promoting infant back sleeping to parents, family members, child care providers, health professionals, and all other caregivers of infants.  NICHD has a variety of publications aimed at reducing the risk of SIDS. Most are available both for order and viewing on line.


American Academy of Pediatrics

The American Academy of Pediatrics (AAP) is an organization of 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. In October 2005, the AAP issued revised recommendations for the prevention of SIDS.

 

Child Care Resources

Healthy Child Care America (HCCA) is a program of the American Academy of Pediatrics which is a collaborative effort of health professionals, child care providers, and families seeking to improve the health and well-being of children in child care. Healthy Child Care America seeks to ensure that all children experience quality child care within a nurturing environment and have a medical home. HCCA's principles are based on the fact that families, child care providers, and health professionals in partnership can promote the healthy development of young children in child care settings and increase access to preventive health services and safe physical environments. The HCCA website has many resources devoted to training, including HCCA Back to Sleep audioteleconference downloads and model state policies.

NRC logo

The National Resource Center for Health and Safety in Child Care (NRC) is located at the University of Colorado Health Sciences Center in Denver, Colorado, and is funded by the Maternal and Child Health Bureau. The NRC's primary mission is to promote health and safety in out-of-home child care settings throughout the nation.

 

Child Death Review

Clinic officeThe National MCH Center for Child Death Review is a national resource center for state and local CDR programs. The Center promotes, supports and enhances child death review methodology and activities at the state, community and national levels, and builds public and private partnerships to incorporate CDR findings into efforts that improve child health. Building on the extensive knowledge of current CDR programs, the Center actively involves states in the development of Center services.

 

Federal Agencies

Centers for Disease Control and Prevention (CDC),

Dept. of Health and Human Services

Consumer Product Safety Commission (CPSC), Dept. of Health and Human Services

Indian Health Service, Dept. of Health and Human Services

Office of Minority Health, Dept. of Health and Human Services

WIC (Women, Infants, and Children) Program, Dept. of Agriculture

 

Partners

Academy of Breastfeeding Medicine

Alliance of Grandparents, A Support in Tragedy (AGAST)

American Academy of Family Physicians (AAFP)

American College of Nurse-Midwives (ACNM)

American College of Obstetricians and Gynecologists (ACOG)

American Public Health Association (APHA)

American SIDS Institute

Association of American Indian Physicians (AAIP)

Association of Teachers of Maternal and Child Health (ATMCH)

Association for Death Education and Counseling (ADEC)

Association of Maternal and Child Health Programs (AMCHP)

Association of State and Territorial Health Officials (ASTHO)

Bright Futures for Families

Childbirth Connection

CityMatCH

CJ Foundation for SIDS

DiversityData.org

First Candle / SIDS Alliance

International Childbirth Education Association (ICEA)

International Society for the Study and Prevention of Infant Death

International Stillbirth Alliance (ISA)

Lamaze International

March of Dimes

MISS Foundation

National Alaska Native American Indian Nurses Association (NANAINA)

National Association of County and City Health Officials (NACCHO)

National Association of Emergency Medical Technicians (NAEMT)

National Association of Hispanic Nurses (NAHN)

National Association of Medical Examiners (NAME)

National Association of Neonatal Nurses (NANN)

National Association of Nurse Practitioners in Women's Health (NPWH)

National Association of Pediatric Nurse Associates and Practitioners (NAPNAP)

National Black Nurses Association (NBNA)

National Center for Education in Maternal and Child Health (NCEMCH)

National Conference of State Legislatures (NCSL)

National Fetal and Infant Mortality Review Program (NFIMR)

National Funeral Directors Association (NFDA)

National Healthy Mothers, Healthy Babies Coalition (HMHB)

National Healthy Start Association (NHSA)

National Medical Association (NMA)

The National Partnership to Help Pregnant Smokers Quit

National Perinatal Association (NPA)

National Stillbirth Society

Postpartum Depression (PPD): MedEdPPD.org

Postpartum Support International (PSI)

Share Pregnancy and Infant Loss Support, Inc.

SIDS Educational Services

SIDS Network, Inc.

Society of Pediatric Nurses (SPN)

Sudden Unexplained Death in Childhood (SUDC) Program

The Compassionate Friends, Inc. (TCF)